Sunday, June 21, 2009

Shit Storm -> Silence

There is a reason I haven't been blogging. I can say all I want that work is more stressful (it is), but the truth of the matter is that I haven't had anything very nice to say, so I've been not saying anything at all.

Just after the marathon (I mean literally - the very next day), we found out Preston's AD was in the hospital. She had a colostomy. She was in the hospital basically all the way until March. Then my boss's parents both died within a month of each other, and work truly was a burden for that month, because there was a lot of slack I was trying to pick up. Then on Easter afternoohn, Preston had his Vertebral Artery Dissection (God smoting the pagans, perhaps?), which he is still on medication for, and we felt the effects of that all the way into May.

On my birthday, May 5th, I was eating anything and everything that I wanted. By afternoon, I felt like I was going to puke. The next day, I was tired, and I still felt like I was going to puke. Everyone at work convinced me I was pregnant, and my last period had been a fluke, so I took two pregnancy tests, which were negative, and waited a month before going to the doc for the fatigue, just in case. That whole month, I felt the fatigue. Every day. Some days worse than others, but I can scarcely remember what normal feels like any more. The doc tested me for everything: AIDS and Syphillis (both of which I knew I didn't have, but I'm a fan of the rule-out, if it helps!), Hepatitis, Mono, pregnancy, h. pylori, Kidney function, liver function, thyroid function, blood count and chemistry. They took 6 vials of blood and a cup of pee!!

I waited a week for the results, and everything, I mean everything, was normal.

What am I supposed to do now?

I heard a piece on NPR on my way to work that rang a bell for me. This is not normal, for me to hear about a disease and think that I have it, but this time I just really do. I was tested Wednesday for Celiac, and though I don't have the results back, I started a gluten free diet on Friday.

Also on Wednesday, AD went back into the hospital, and Preston came home with a 102 fever and seriousl GI problems. She's still in ICU, but we haven't seen her because of P's sickness. He's starting to feel a bit better, but I think he may have passed it on to me.

That's it. 6 months of insanity.

I write this now because I am hopeful that my part in the insanity is almost over. I hope this test shows I have Celiac so that I can fix this mind-numbing fatigue. I hope Preston's follow-up on his VAD in late July shows him healed so that he can go back to normal. And assuming AD is ok, we are having a vacation to London soon.

So, it is my ferverent hope that my roller coaster is about to come out of its prolonged free-fall, and start actually climbing the hill again. That's my hope, and I'm sticking to it.

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